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TitleTrust, morality and altruism in the donation of biological material : the case of Portugal
Author(s)Machado, Helena
Silva, Susana
KeywordsDonation of human biological material
Quality and safety
Issue date2009
PublisherTaylor & Francis
JournalNew Genetics and Society
Abstract(s)This paper examines a number of social, ethical and cultural issues related to the application of biotechnology. The focus of the paper relies on two different cases of governing biotechnology in Portugal, referring to donation of biological material: the act of donation of eggs and sperm; and volunteers for donation of DNA material for the forensic national DNA database. We analyze the discourses on donation of biological material framing them in rhetorical devices of gift, altruism, informed consent and social responsibility. This comes blended with still unclear and emergent regulation and policies of access, retention, preservation and governing of biological material and of donors’ identification. The risks are mitigated by narratives of science and technology as social progress and providers of public good and health benefits, as well as by underlining the individual responsibility in this domain and by reinforcing the rhetoric of gene quality, based on socio-cultural and bio-genetic criteria.
Publisher version
AccessOpen access
Appears in Collections:CECS - Artigos em revistas internacionais / Articles in international journals
DS/CICS - Artigos em Revistas Internacionais/Articles in International Journals

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